Saturday, November 12, 2011

Rites of Passage

When I was 16, there came a knock at my door one school night from a girl who was a year older or maybe two, a former friend from whom I’d been separated on the cusp of childhood and adolescence by the jagged break between elementary school and junior high. After that, we lost touch, even though she lived just around the corner from me.
She had been working in the stables of the farm at the edge of our neighborhood because she loved animals and wanted to become a vet. On this night, one of the horses was giving birth, and she came on foot to bring me to see. It was one of those beautiful moments in life that occurs wholly by a response to grace. We had not spoken in five years, yet she thought of coming to get me.
We walked briskly through the night air, over the darkened streets and across the main road, through the fence and up the dirt path to the barn in which this horse was in labor. For hours we stood at the edge of her stall as the foal emerged from the womb of its mother, legs first. And then, we watched as those legs labored to stand, each one giving out in its turn at the effort, the foal crumbling to the hay again and again. 
I am reminded this cold autumn night of that foal’s struggle to be born and to stand on those frail tenuous legs, bearing resemblance to my own passage to new life, this moment that is unfolding over the course of days and weeks in which I attempt to stand again and again… pushing a bit harder and further, each time undertaking something more, mindfully watching for my knees to give way, my legs to buckle, yet remaining steadfast in pressing onward.  
Photo: Courtesy of Shahim Al Nakeeb

Tuesday, November 1, 2011

All Saints

For All Saints Day, I offer you, in the words of Dom Marmion, “the teaching that our Lord Himself gave to St. Mechtilde” on suffering.
“One day whilst she was thinking that her illness made her useless and that her sufferings were unavailing, the Lord said to her: “Place all your pains in My Heart and I will give them the most absolute perfection that suffering can possess. As My divinity drew to itself the sufferings of My humanity and made them its own, so will I transport your pains into My divinity, I will unite them to My Passion and make you share in that glory which God the Father has bestowed on My sacred humanity in return for all its sufferings. Confide, therefore, each of your pains to Love in saying: ‘O Love, I give them to You with the same intention that You had when You did bring them to me from the Heart of God, and I beseech You to offer them to Him again, made perfect by intensest gratitude…’” “My Passion,” added Christ Jesus, “bore infinite fruit in heaven and upon earth; thus your pains, your tribulations offered to Me and united to My Passion will be so fruitful that they will procure more glory for the elect, new merit for the just, forgiveness for sinners, and an alleviation of their pains for the souls in purgatory. What is there indeed that My Heart cannot change for the better, since it is from the goodness of My Heart that all good flows both in heaven and on earth?” (From Suffering with Christ: An Anthology of the Writings of Dom Columba Marmion, OSB)
As I found myself last week in a very cold place that even sweaters and woolens could do little to help, Dom Marmion emerged from the rows of books in the library of the monastery where I was staying. He is an old friend from before my illness, with whom I sat for a while as my limbs stiffened with chill, and finding this passage in the anthology, sipping apple cinnamon tea, I thought of you.


It is good to remember that as we suffer our sufferings of illness, there are nuns and monks living in voluntary poverty for the sake of penance, freezing in monasteries all over the world! No matter where we are, or what we choose for ourselves, what is chosen for us by God is that we enter into His Passion in some way or other, accepting whatever His way for us might be with trust and gratitude, in order that we may reap the abundant fruit such communion bears.

Tuesday, October 18, 2011

Subtitles

If you have been following from the beginning, then you have noticed a change of subtitle, not once, but now three times. Names and titles are almost always a struggle for me to choose, and in this case especially, because what I am naming has yet to be written. What I am naming has yet to be known.
In composing an essay or a novel, for instance, an author must have some sense in advance what is going to be said, what is going to happen, what the end will be, why and how it will be the end or point of closure. But even then, it is difficult to choose a really fitting title until after the work is finished.
What has happened here is I have set out with one intention to fulfill, one mission to accomplish, and now find myself being led beyond it. I realize it is not only for me that this is the case, but for you and for the ongoing fulfillment of His purpose in having me exist and be someone who is writing any of this at all.
So, He is bringing us beyond the ideological foundation that has been laid here during the past six months, which I have lived and practiced for many years now, and have tried to convey to you over and over again in various ways, tones and voices… that foundation being composed of writings reflecting a Christian attitude and orientation to bearing the hardships of chronic illness.
As we move now into what would properly be called Part 2 of this blog, I will attempt to name it well in calling it, “The Journey of a Soul in Happy Surrender to God’s Will,” which will simply be, the unfolding of a life in continued fulfillment of its purpose.

Sunday, October 16, 2011

Beyond the Boardwalk

Lyme disease is extraordinary in its capacity to utterly ravage a human being, to take every worldly thing we take for granted, away. I have seen the faces of doctors contort with dread in the face of this diagnosis. I have known people to lose their spouses, families, and friendships on account of it. Careers and jobs along with income and then homes have been lost to the debilitation rendered by this disease. The multiplicity of symptoms and effects Lyme can produce within a single individual can cause a person to appear mad when presenting their list of woes to medical professionals as well as those closest to them in an attempt to gain some aid, cooperation or relief. The illness is long and is never really cured. Insult is added to injury in bearing the burden of widespread social ignorance and disagreement within the medical community. Moreover, we live wondering what’s going to happen from day to day inside of us, not knowing when we will ever begin to get better, when illness will stop manifesting in so many ways, when it is Lyme or something else that is wrong with us, knowing that even if Lyme is not the root cause, it’s going to make whatever else we get much worse, for as long as we live.

That said, as I have mentioned before, for me, it is one of the greatest things ever to happen. I harbor this sentiment, I believe, in a manner similar to a veteran’s fond remembrance of his or her formation as a soldier. While it was breaking me down, it was rendering me malleable in the hands of the One to whom I had given myself to form me in holiness. Throughout, I have trusted His choice of ways and the spiritual exercises He has called me to engage, and though I am not quite a saint, I am closer in my becoming than I was before illness.

When I began this blog in April, I intended to wade through the days with you, focused on the business of getting through one after the other, offering the support of a fellow Lyme sufferer and a sort of spiritual touchstone by which to grasp and remember the blessings to be found in illness itself, as that which brings us ever closer to Christ. Yet it seems I have come to a place where the days are not what they used to be… they are not what they were in year one, two, three or four as I am now five months into year five. I have heard from others, it was the fifth year that brought them to a place where they could begin to recover a life that resembled something they had once lived prior to Lyme disease, and it seems this is happening for me. So, it may be that I am blogging now, not only to utter reminders of blessings, but to offer hope.

Before this, I never thought I would have a day ever again where I did not experience at some point in it, crushing exhaustion with or without exertion. I never thought I would be able to eat a cookie again, without my brain swelling, the room spinning, and my thoughts dampening. I never thought I’d fit into my favorite jeans again… and that’s a weight gain I’m talking about! Don’t get me wrong, I’m not the image of health I was before infection, but I am now entering a time where I can get by in ways I have not been able to for years. While I still cannot go the length of the boardwalk without stopping to rest a few times, I can actually make it to the boardwalk and walk without fear of getting stranded, unable from enervation to make it back to where I began. You see, there was a time when I could not even have ventured to try. And though my head is still ringing, and my muscles are not as strong as before, my stamina is improving both physically and cognitively which is opening up a new palate of possibilities for the future… hence, the poem of last Wednesday.

For awhile now, I’ve been traversing and pondering this transition toward something new, which I first remarked on in the August post entitled, “A New Season.” Living four and a half years through changing phases of chronic illness, I am tentative in issuing any proclamations of wellness. Yet my life itself is moving toward a change; I am simply following the promptings of the One who is leading me, to whom I have entrusted myself. I don’t know what’s going to happen from here on, but I hope that my journey brings you hope…

Wednesday, October 12, 2011

Untitled

Emerging from this cocoon,
this gauze
that has shrouded me for years,
turning me from who I was
into who I am,
I look back,
beyond the beginning of illness
to the past, like a collage,
an old photo album,
a chest full of memories,
artifacts,
diaries…
It is strange,
being on the cusp of something new,
when for so long
and so slowly the movement toward it progressed.

Yet there are fragments of the past that need
remembering, addressing, consulting...  

And there is grace meted out,
to face these things.
To remember, the story of my life.

Saturday, October 1, 2011

Therese


"When I was a child, suffering used to make me sad;
now I taste its bitterness with joy and peace."


Friday, September 23, 2011

Padre Pio's Suffering

Today is the memorial feast day of Saint Pio of Pietrelcina. As the meditation for the day, the Magnificat offers the following words written by Padre Pio to his spiritual director:
“Jesus tells me that in love it is he who delights me, while in suffering, on the other hand, it is I who give pleasure to him. Now, to desire good health would mean seeking happiness for myself instead of trying to comfort Jesus. Yes, I love the cross, the cross alone; I love it because I see it always on Jesus’ shoulders. By this time Jesus is well aware that my entire life, my whole heart is consecrated to him and to his sufferings….
When Jesus wants to make me understand that he loves me, he permits me to relish the wounds, the thorns, the anguish of his Passion… But when he wants to be delighted, he speaks to me of his sufferings, he invites me in a tone which is both a request and a command to offer my body that his sufferings may be alleviated.”
Not exactly the norm in terms of what a spiritual director is given to work with! Here, it is likely the case that the director is chosen by God to witness the extraordinary gifts made manifest by God in this humble soul of a man. In and through Padre Pio we gain insight beyond what we ordinarily hear from the learned who attempt to convey some portrait of the divine.   
For instance, in telling us, “while in suffering…it is I who give pleasure to him,” Padre Pio is saying that Jesus takes pleasure in his suffering. Yes, that is what Padre Pio is telling us. Jesus is pleased with Pio’s suffering, not because he is suffering for suffering's sake, but because his entire life and his whole heart has been consecrated to Jesus and His sufferings. It is an expression of the cooperation of the human will with the divine will, an offering made by the human to the divine in response to His unique call to this soul, both a request and a command to offer his body… Padre Pio’s is a love that reflects the divine love itself which in Jesus undertook suffering for the sake of humanity. In other words, there is a human being, named Pio, who has undertaken to suffer for the sake of God, with the same love that God undertook to suffer for Pio’s sake. In Padre Pio we see a human being who has been willing to respond to God and His suffering in the very manner that God responded to human suffering.     
Having lived 50 years of his life bearing the stigmata of Christ in his own flesh, bearing the spiritual wounds of Christ in being privy to see the sins of human hearts, bearing the emotional pains of persecution, calumny and the like, and bearing natural human illnesses to which his body was subject as a man, all offered to Jesus in love, for the love of God and the good of souls, we hereafter are left not only with the memory of such a man and his letters, but even in death, Pio’s body still speaks of Jesus’ love for his suffering, in the divine will to preserve the body from corruption.  

Tuesday, September 20, 2011

Soul Kiss

Sunday night I stood before a room full of strangers and spoke of my experience with Lyme disease. It was because a certain priest had found my story miraculous insofar as I did not despair in the wake of bearing such an illness, that he invited me to speak to this group of charismatic intercessors. I had nothing prepared to say, and really, no intention of speaking. I just went along to see what was going to happen.
Well, what happened was, I spoke; not eloquently, but simply to say that God is our strength in weakness. That it would be impossible for me to stand at all without His willing that I be able to do so. That it was Him who moved my legs when I could not move them by myself, that it was Him who inhabited me at my weakest moments animating me with any life at all. That my brain was so profoundly infected at one time that I was unable to compose a coherent sentence and now I stood before them speaking cohesively and comprehensibly.
The key to getting to where I stood before them with nary even a fleeting fantasy of ending my suffering was that I always trusted in Him, and never lost trust in Him. With unwavering certainty, I knew that He knew every moment of trial I endured and I trusted that all of it would be put to good use with none of it going to waste. I knew that He was present with me in every moment, when I was conscious and unconscious, weary and worn out, pressing and pressing my legs to move on that treadmill, blinking through blurry eyes to read prayers, forcing food down my throat, sitting like a zombie before Him in the Blessed Sacrament, etc.
I concluded by announcing that my illness has been one of the greatest things ever to happen to me, for it set me within a disposition to God so utterly docile, so utterly in need, so utterly dependent that we became fused in a way that would otherwise have been impossible. With such an intimate fusion, there is inevitably a kiss that occurs, an ever deepening and eternal kiss so consuming as to absorb the soul in desire that it should never be parted from this kiss, neither from the act of kissing nor the kisser Himself. When it is Christ whose arms embrace us and whose heart is thirsting for us, how can we for even a moment stand to withdraw from His desire whatever it should be?
So, if it is my purification through illness and the benefits my suffering accrues to others that He desires, I say, let it be done to me according to Thy word.